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Jarrad Simpson, Blake Huntly and Jesse Kite with Tammy Nash

TAMMY Nash has never been one to seek the limelight. A quiet achiever, Tammy has been a reliable and positive employee of Currajong for a few years now and is popular among staff and participants.

So when she saw a recent story on the Today Show about a call out to help Henley Carey she felt compelled.

Henley has severe Mucopolysaccharidosis type I (MPS I).

“I saw Henley struggling with MPS so I knew I had to get involved,” she said.

“So I organised a painting for Henley’s room created by our participants.”

“A big thanks to all who contributed – you’re all stars!”

Henley Carey, one, from Coolaman, in south east NSW, was diagnosed with a rare genetic disorder that causes his body to swell, putting pressure on his organs.

But despite the disease, which affects one in 88,000 children, being incurable a bone marrow transplant will add years to his life.

His brother, Darcy, 3, will undergo surgery to give his younger brother bone marrow.

“I just knew I had to get involved,” said Tammy.

“It really left an impression and I am so glad everyone has run with it!”

Children who suffer from severe Mucopolysaccharidosis type I (MPS I) rarely live past 10 years old.

HENLEY’S MISSION

  • Henley Carey, 1, was diagnosed with Mucopolysaccharidosis type I in March 
  • The rare genetic condition causes swelling in his body which impairs his organs
  • Darcy Carey, 3, will undergo surgery to give his younger brother bone marrow
  • While the disorder is incurable, the transplant will extend, and better, his life
  • A gofundme page has been created to help the family, from Coolaman, NSW 
Zack Gibson of Fire & Rescue NSW Parkes 417 with Currajong's Jackson Collier and the cupcakes he made for staff

JACKSON Collier hasn’t been at Currajong long but he’s already leaving a great impression on everyone.

From his silky licks on his Maton guitar to now Masterchef in the Currajong Kitchen – he is certainly taking opportunities to try his hand at a number of activities and skills. The latest culminating in cakes for our Fire & Rescue NSW Parkes 417.

“It is just another way to say thank you to our front line essential workers,” said Indigo Kriedemann of Currajong.

“Organisations like Fire & Rescue NSW Parkes 417 are a credit to themselves and the community,” she said.

“We just wanted to let them know how grateful we are here at Currajong.”

Fire & Rescue NSW Parkes 417 Zack Gibson (top left) was rapt with the gesture and paid tribute to Currajong and Jackson for the gesture.

“We are very thankful and like Currajong we appreciate all they do as front line essential service,” Zack said.

“Jackson is a an outstanding young man and a great cook,” he said.

“I have no doubt everyone at the station will love the cakes too!”

The Currajong Kitchen has been in full swing over the past few weeks and been well received by the essential service sector from medical professionals to firefighters and police.

“It’s these small tokens of goodwill that will get us all through and it’s great the participants of Currajong are finding such ways to contribute positively to the community during such a difficult time,” Zack said.

“Thank you!”

Latest NDIS advice for participants/providers – 25 March

The NDIA is making some changes to the plan review process in response to the coronavirus (COVID-19) pandemic.

If a participant has a scheduled plan review, the NDIA will contact them by phone or email to undertake their review.

As part of this plan review process, a participant can discuss having a new plan in place for up to 24 months.

In addition, the NDIA will be making changes to NDIS systems over the weekend to make sure participants have the funding they need during the
coronavirus (COVID-19) pandemic.

To ensure participant plans don’t end, on the day a plan is due to expire, it will be automatically be extended by 365 days.

Previously these automatic plan extensions were for 28 days but will now will be 365.

Participants who have plans that expires soon, do not need to do anything to have their plans automatically extended by 365 days.

For more info go to – https://www.ndis.gov.au/

Message to the Currajong Disability Services Community about COVID-19

 COVID-19 has impacted our world and transformed the lives of so many people, our thoughts are with all who are affected by this global outbreak.

Currajong remains focused on supporting our NDIS participants, their families/carers/support networks and the wider community. This unprecedented crisis has concentrated our efforts on ensuring the safety and protection of our participants and staff while remaining proactively compliant with the Australia Government regulations/recommendations and still providing the high-quality service and support Currajong is known for.

Currajong has implemented all the personal hygiene recommendations and social distancing regulations of the Australian Government and will continue to comply with any future directives to minimise the spread and risk of infection with the Coronavirus. Currajong has implemented several changes in its day to day operation, endeavouring to ensure we can continue to deliver necessary supports and provide the essential services that people with a disability require throughout this time of global and national crisis. These include:

Providing increased 1:1 Support Services rather than group-based activities.

Temporary closure of the Day Program group activity schedule.

Ensuring continuity of support to high-risk vulnerable individuals in their home.

Monitoring access to our Supported Accommodation Services.

Personal consultation with participants and families on how Currajong can best support them through this unfolding crisis.

Ensuring surfaces and equipment are regularly cleaned and disinfected frequently each day and in between use.

Limiting the amount of non-essential travel for Participants and staff.

Allowing office employees who can work remotely from home to do so.

Currajong is committed to supporting individuals with a disability during this challenging time and is continually exploring how we can provide the necessary supports you require. Our team is available for any questions or to discuss your concerns.

Stay safe and well

Jeffrey Evans

CEO