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Jarrad Simpson, Blake Huntly and Jesse Kite with Tammy Nash

TAMMY Nash has never been one to seek the limelight. A quiet achiever, Tammy has been a reliable and positive employee of Currajong for a few years now and is popular among staff and participants.

So when she saw a recent story on the Today Show about a call out to help Henley Carey she felt compelled.

Henley has severe Mucopolysaccharidosis type I (MPS I).

“I saw Henley struggling with MPS so I knew I had to get involved,” she said.

“So I organised a painting for Henley’s room created by our participants.”

“A big thanks to all who contributed – you’re all stars!”

Henley Carey, one, from Coolaman, in south east NSW, was diagnosed with a rare genetic disorder that causes his body to swell, putting pressure on his organs.

But despite the disease, which affects one in 88,000 children, being incurable a bone marrow transplant will add years to his life.

His brother, Darcy, 3, will undergo surgery to give his younger brother bone marrow.

“I just knew I had to get involved,” said Tammy.

“It really left an impression and I am so glad everyone has run with it!”

Children who suffer from severe Mucopolysaccharidosis type I (MPS I) rarely live past 10 years old.


  • Henley Carey, 1, was diagnosed with Mucopolysaccharidosis type I in March 
  • The rare genetic condition causes swelling in his body which impairs his organs
  • Darcy Carey, 3, will undergo surgery to give his younger brother bone marrow
  • While the disorder is incurable, the transplant will extend, and better, his life
  • A gofundme page has been created to help the family, from Coolaman, NSW