TAMMY Nash has never been one to seek the limelight. A quiet achiever, Tammy has been a reliable and positive employee of Currajong for a few years now and is popular among staff and participants.
So when she saw a recent story on the Today Show about a call out to help Henley Carey she felt compelled.
Henley has severe Mucopolysaccharidosis type I (MPS I).
“I saw Henley struggling with MPS so I knew I had to get involved,” she said.
“So I organised a painting for Henley’s room created by our participants.”
“A big thanks to all who contributed – you’re all stars!”
Henley Carey, one, from Coolaman, in south east NSW, was diagnosed with a rare genetic disorder that causes his body to swell, putting pressure on his organs.
But despite the disease, which affects one in 88,000 children, being incurable a bone marrow transplant will add years to his life.
His brother, Darcy, 3, will undergo surgery to give his younger brother bone marrow.
“I just knew I had to get involved,” said Tammy.
“It really left an impression and I am so glad everyone has run with it!”
Children who suffer from severe Mucopolysaccharidosis type I (MPS I) rarely live past 10 years old.
- Henley Carey, 1, was diagnosed with Mucopolysaccharidosis type I in March
- The rare genetic condition causes swelling in his body which impairs his organs
- Darcy Carey, 3, will undergo surgery to give his younger brother bone marrow
- While the disorder is incurable, the transplant will extend, and better, his life
- A gofundme page has been created to help the family, from Coolaman, NSW